Phone: (414) 918-9822    Email: [email protected]

Grant Award Winners

Fall 2017 Large Grants

Kiana Johnson, East Tennessee State University
Healthcare Transition Readiness and Health Self-management among youth with Juvenile Systemic Lupus

Kathleen O'Neil, Indiana University School of Medicine
The Relationship Between Changes in Adipokine Levels and Disease Activity in Pubertal Children with SLE

Fall 2017 Small Grants

Fatima Barbar-Smiley, Nationwide Children's Hospital
Immunogenicity of pneumococcal vaccination and impact on nasopharyngeal pneumococcus colonization in patients with childhood onset systemic lupus erythematosus

Y. Ingrid Goh, The Hospital for Sick Children
Patient and Caregiver Engagement in Research (PACER): Approaching for research on date of rheumatic diagnosis—a pilot project

Joyce Hui-Yuen, Cohen Children's Medical Center
Feasibility of Conducting Epigenetic Analysis in Pediatric Lupus B Cells

Suzanne Li, Hackensack University Medical Center
Tracking Disease Activity in Juvenile Localized Scleroderma with a Mobile App

Melissa Oliver, Indiana University, Riley Hospital for Children
Clinical disease manifestations associated with anti-TNF non-response in Juvenile Spondyloarthropathy

Victoria Werth, The University of Pennsylvania
Evaluation of the reliability and validity of the Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) in pediatrics

Leandra Woolnough, Texas Scottish Rite Hospital for Children
Longitudinal Musculoskeletal Ultrasound Assessment in Juvenile Idiopathic Arthritis

Spring 2017 Small Grants

Deirdre De Ranieri, University of Chicago
Subclinical synovitis in oligoarticular JIA: A risk factor for polyarticular disease?

Jonathan Hausmann, Boston Children's Hospital
Continuous temperature monitoring to improve diagnosis and treatment of PFAPA

Linda Hiraki, University of Toronto - The Hospital for Sick Children
Discovering genetic variants for early onset and familial lupus in the thousand faces of SLE

Amer Khoja, Lurie Children's Hospital
Can we predict the effectiveness of B cell depletion after rituzimab therapy in children with JDM?

Susan Kim, UCSF Benioff Children's Hospital
Crowdsourcing and improving assessment of skin disease in pediatric rheumatology

Lily Lim, University of Manitoba
Identifying trajectories of disease activity states in JIA early after treatment: Shortening time to decision to change treatment

Sherene Mason, Samitri Dogra, Connecticut Children's Medical Center
Maintenance therapy withdrawal of mycophenolate mofetil in pediatric proliferative lupus nephritis: A multi-centered retrospective cohort study

Eyal Muscal, Texas Children's Hospital, Baylor College of Medicine
Developing CTPs and Family-Centered Functional Outcome Measures in Pediatric Autoimmune Encephalitis

Alysha Taxter, Wake Forest Brenner Children's Medical Center
Optimizing the electronic health record to capture CARRA data

Melissa Tesher, University of Chicago, Comer Children's Hospital
Utility of the PSAQ in assessing for fibromyalgia in JIA patients

Marinka Twilt, Alberta Children's Hospital
Improving care for children with autoinflammatory diseases

Patricia Vega-Fernandez, Emory University
Limited vs comprehensive standardized musculoskeletal ultrasound examination in JIA

Yongdong (Dan) Zhao, Seattle Children's Hospital
Standardized assessment of the inflammation in bone and soft tissue in chronic nonbacterial osteomyelitis from MRI images

Fall 2016 Large Grants

Andrea Knight, Children's Hospital of Philadelphia
The Impact of Mental Health Disorders on Medication Adherence & Health Care Utilization in Youth with Lupus.

Betsy Mellins, Vivian Saper, Stanford University Medical Center
Clinical and translational investigation of parenchymal lung disease in sJIA: A planning grant.

Fall 2016 Small Grants

Kaveh Ardalan, Children's Hospital of Chicago/Lisa Arkin, University of Wisconsin School of Medicine      
Investigation of Pediatric-Onset Cutaneous Lupus

Mara Becker, Children's Mercy Hospital
Pharmacogenomic Predictors of MTX Polyglutamation

Alexis Boneparth, Columbia University Medical Center 
Small Fiber Neuropathy in Juvenile Fibromyalgia

Mark Connelly, Children's Mercy Hospital
Registry-Assisted Dissemination of Mobile Pain Management for Youth with Arthritis

Jennifer Cooper, University of California, San Francisco 
Predicting Early Atherosclerosis in Childhood-Onset SLE (PEACE), and APPLE Sub-study

Kristen Hayward, Seattle Children's Hospital
Early Investigator Writing Group Pilot Project

Dan Horton, Rutgers      
Medication Discontinuation in JIA: Perspective of Patients and Families

Susan Kim, University of California, San Francisco
PeDRA-CARRA Collaboration JDM Committee

Andrea Knight, Children's Hospital of Philadelphia
Behavioral Health Provider Perspectives on Mental Health Intervention for Youth with SLE

Rebecca Kunder, Gilead Sciences
Antibodies to HLA Molecules and the T Cell Response in Pediatric Systemic Lupus Nephritis

Kim Morishita, British Columbia Children's Hospital
Early Renal Outcomes in Pediatric ANCA Associated Vasculitis

Tamar Rubinstein, Children's Hospital at Montefiore
Screening for Mood Disorder in Youth with Lupus

Anne Stevens, Seattle Children's Hospital
Simultaneous Nutritional Assessment and Microbiotic Phenotyping in Kawasaki Disease

Kathryn Torok, University of Pittsburgh
Identifying Juvenile Scleroderma Immunophenotype

Heather Tory, Connecticut Children's Medical Center
PROs and Functional Status Measures in JDM: Part 1

Yongdong (Dan) Zhao, Seattle Children's Hospital
Pilot Study to Develop Urinary Biomarker of Disease Activity in Chronic Nonbacterial Osteomyelitis