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2018 Abstracts

 Oral Abstracts

1

Abstract

Basic / Translational

Identifying Juvenile Scleroderma Immunophenotype Subsets

K Torok, S Li, A Stevens, M Fritzler, L Schanberg, K Mieszkalski, A Dennos, S Ringold, M Natter, ML Chang, E Mirizio, K Schollaert-Fitch

2

Abstract

Clinical

Increased Exposure to Adverse Childhood Experiences is Associated with Arthritis in a National Sample of US Youth

T Rubinstein, D R Bullock, K Ardalan, W Mowrey, N Brown, R E Stein

3

Abstract

Clinical

Working Towards Comparative Effectiveness Studies for Moderate to Severe Juvenile Localized Scleroderma: Results of a 1-Year Pilot Study of Three Methotrexate-Based Consensus Treatment Plans

S Li, K Torok, S Hong, P Ferguson, C E Rabinovich, M Becker, M Ibarra, F Dedeoglu, R Fuhlbrigge, K Stewart, E Pope, R Laxer, T Mason, G Higgins, M Punaro, L Schanberg, T Andrews

4

CARRA-AF Large Grant

Clinical

Update on Lung Disease in Children with Systemic Juvenile Idiopathic Arthritis (sJIA)

V Saper, P Guillerman, A Leung, R Balise, L Bouzoubaa, A Westrik, A Martin, T Desai,  K Abulaban, K Baszis, E Behrens, J Birmingham, S Canna, A Casey, M Cidon,
R Cron, A De, F De Benedetti, R Deterding, I Ferguson, S Goodman, B Graham, A Grom, K Haines,
M Hazen, L Henderson, M Ibarra, CJ Inman, R Jerath, D Kingsbury, M Klein-Gitelman, K Khawaja,  K Lai, D Liptzin, C Lin, J Lin, S Lapidus,  J Mombourquette, K Onel, S Ozen,  M Perez,  K Phillippi, S Prahal, S  Radhakrishna, A Reinhardt, M Riskalla, N Rosenwasser, J Roth, R Schneider, D Schonenberg-Meinema, G Schulert, S Shenoi, J Smith, E Sonmez, M Stoll, C Towe, R Vehe, L Young, E Mellins

5

CARRA Project

Clinical

Biologic Switching Among JIA patients: A Cohort Study in the Childhood Arthritis and Rheumatology Research Alliance Registry

M L Mannion, F Xie, D B Horton, S Ringold, C K Correll, A Dennos, T Beukelman, CARRA Registry Investigators


Poster Abstracts

Poster #

Type

Category

Title

Authors

1

CARRA-AF Small Grant

Basic / Translational

Feasibility of Conducting Epigenetic Analysis in Pediatric Lupus B Cells

J Hui-Yuen, JN Jarvis

2

CARRA-AF Small Grant

Basic / Translational

Kappa-Deleting Recombination Excision Circles (KREC) in B Cells: an Aid in Predicting Juvenile Dermatomyositis Response to Rituximab

A Khojah, V Hans, M Miller, M Klein-Gitelman, M Curran, R Fuleihan, G  Morgan, CC Huang, LM Pachman

3

CARRA-AF Small Grant

Basic / Translational

Discovering genetic variants for early onset and familial lupus in the thousand faces of systemic lupus erythematosus (SLE)

D Dominguez, D Levy, LT Hiraki

4

CARRA-AF Small Grant

Basic / Translational

Nasopharyngeal Pneumococcus Colonization in patients with Childhood Onset Systemic Lupus Erythematosus (cSLE)

F Barbar-Smiley, S Ardoin, CY Yu, O Ramilo

5

CARRA-AF Small Grant

Clinical

Stopping Medicines for Inactive Juvenile Idiopathic Arthritis: What Do Patients and Families Consider?

DB Horton, J Salas, A Wec, T Beukelman, AD Boneparth, J Guzman, K Haverkamp, M Kohlheim, ML Mannion, LN Moorthy, E Stringer, L Tucker, S Ringold, M Rosenthal

6

CARRA-AF Small Grant

Clinical

Clinical Disease Manifestations associated with TNF inhibitor failure in Juvenile Spondyloarthritis

M Oliver, PF Weiss, RA Colbert, H Srinivasalu

7

CARRA-AF Small Grant

Clinical

Identifying Trajectories of Disease Activity States in Juvenile Idiopathic Arthritis (JIA) Early After Treatment: Shortening Time to Decision to Change Treatment

L Lim, S Ringold, E Pullenayegum, E Silverman, F de Benedetti, L Schanberg, Y Kimura

8

CARRA-AF Small Grant

Clinical

Optimizing the Electronic Health Record to Capture Childhood Arthritis and Rheumatology Research Alliance (CARRA) Data

AJ Taxter, JM Patel, A Dharod

9

CARRA-AF Small Grant

Clinical

Utility of the Pain Symptom Assessment Questionnaire (PSAQ) to assess fibromyalgia in JIA patients

M Tesher, TB Graham, T Ting, J Weiss

10

CARRA-AF Small Grant

Clinical

A Pilot Study: Can Musculoskeletal Ultrasound (MSUS) be utilized as an Objective Measure of Disease Activity in a Consensus Treatment Plan for Patients Newly Diagnosed with Polyarticular Juvenile Idiopathic Arthritis (JIA)?

H Benham, L Woolnough, Y Kanaan, D Wilkes, T Wright

11

CARRA-AF Small Grant

Clinical

Musculoskeletal Ultrasound Study In Childhood Arthritis a Limited Examination

P Vega-Fernandez, TV Ting, EJ Oberle, J Roth

12

CARRA-AF Small Grant

Clinical

Subclinical Synovitis in Oligoarticular JIA: A Risk Factor for Polyarticular Disease?

D De Ranieri

13

CARRA-AF Small Grant

Clinical

Longitudinal Musculoskeletal Ultrasound in Juvenile Idiopathic Arthritis

LU Woolnough, H Benham, Y Kanaan, D Wilkes, T Wright, M Punaro

14

CARRA-AF Small Grant

Basic / Translational

Pilot Study to Develop Urinary Biomarker of Disease Activity in Chronic Nonbacterial Osteomyelitis

Y Zhao, AM Stevens, PJ Ferguson

15

CARRA-AF Small Grant

Clinical

Development of Standardized Assessment of the Inflammation in Bone and Soft Tissue in Chronic Nonbacterial Osteomyelitis from MRI Images

Y Zhao, TS Sato, M Beer, M Huang, RS Iyer, M McGuire, AV Ngo, JP Otjen, J Panwar, J Stimec, M  Thapa, P Toma, A Taneja, PJ Ferguson

16

CARRA-AF Small Grant

Clinical

Improving Care for Children with Autoinflammatory diseases: CARRA-sponsored Network Building

M Twilt, E Muscal, A Sepulveda, R Yeung, S Benseler

17

CARRA-AF Small Grant

Clinical

Continuous Temperature Monitoring to Improve Diagnosis and Treatment of PFAPA

JS Hausmann, K Manthiram, E Anderson, S Lapidus, F  Dedeoglu

18

CARRA-AF Large Grant

Clinical

The Impact of Psychiatric Comorbidity on Health Care Utilization for Youth with SLE

A Knight, A Davis, M Klein-Gitelman, J Faerber, H Katcoff, Z Cidav, DS Mandell

19

CARRA-AF Small Grant

Clinical

Patient and Parent Acceptability of Mental Health Screening in the Rheumatology Clinic for Youth with Systemic Lupus Erythematosus

T Rubinstein, M Dionizovik-Dimanovski, R Kraus, JT  Jones, J Harris, M Rodriguez, M Tesher, L  Faust, B Rutstein, C Smith, R Puplava, E Rojas, A Davis, S Sule, K Onel, E von Scheven, A Knight

20

CARRA-AF Small Grant

Clinical

Maintenance Therapy Discontinuation of Mycophenolate Mofetil in Pediatric Proliferative Lupus Nephritis: A Multi-Centered Retrospective Cohort Study

S Mason, M DeGuzman, M Carpenter, JC Lane, S Dogra

21

CARRA-AF Large Grant

Clinical

The Relationship between Changes in Adipokine Levels and Disease Activity in Pubertal Children with SLE

M Rodriguez, K O'Neil

22

CARRA-AF Small Grant

Clinical

Evaluation of the reliability and validity of the Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) in pediatrics

CJ Kushner, M Tarazi, LM Arkin, K Ardalan, H Brandling-Bennett,  VP  Werth

23

CARRA-AF Small Grant

Clinical

Development of a Mobile App to Track Disease Activity in Juvenile Localized Scleroderma

S Li, X Li, J Chen

24

CARRA-AF Small Grant

Clinical

Renal Disease Course in Pediatric Anti-Neutrophil Cytoplasmic Antibody Associated Vasculitis in the First 12-Months – a Pediatric Vasculitis Initiative (PedVas) Study

K Morishita, A Chen, C Mammen, A Rivera, D Cabral

25

CARRA-AF Small Grant

Clinical

Enhancing Care for Children with Autoimmune Encephalitis (AE): CARRA-sponsored Multi-disciplinary Network Building

E Muscal, H Van Mater, E  Wells, M Twilt, D Co, S Benseler

26

CARRA-AF Large Grant

Clinical

Engaging patients and parents to improve mental health for youth with rheumatologic disease

D Napoli, M Napoli, M  Moyer, R Adamski, V  Delgaizo, M Rodriguez, A  Knight

27

CARRA-AF Large Grant

Clinical

Preliminary Analyses Examining Correlates of Health Self-management

K. Johnson, A Richmond, E Muscal, RK Vehe, KM O’Neil

28

CARRA-AF Small Grant

Clinical

Epidermal Nerve Fiber Density in Juvenile Fibromyalgia

A Boneparth, DB Horton, LN Moorthy, HM Downs, AL Oakland

29

CARRA-AF Small Grant

Clinical

Development of a Systematic Approach to Identify Factors Influencing Enrollment in Pediatric Rheumatology Research

YI Goh, V Del Gaizo, A Sirois, JE Weiss, M Ellen, JM Sanzari, E Muscal, C McMullen-Jackson, CJ Inman, S Jones, J Huntington, BM Feldman

30

CARRA-AF Small Grant

Quality / Education

Planning Grant: Crowdsourcing and Improving Assessment of Skin Disease in Pediatric Rheumatology

S Kim, D Hadley, Y Chiu,  M Dave, P Kahn, A Huber

31

CARRA Project

Quality / Education

Research Priorities among Parents and Families of Children with Rheumatic Disease

CK Correll, M Dave, A Paul, V Del Gaizo, EM Morgan

32

CARRA Project

Basic / Translational

Higher Serum Complement C4 Levels and C4B Gene Copy Numbers Are Associated with Increased Risk for Hypertension and Significant Response to Prophylactic Atorvastatin for Atherosclerosis Prevention in Pediatric Systemic Lupus Erythematosus (pSLE)

EM Mulvihill, SP Ardoin, SD Thompson, B Zhou, GR Yu, NG Singer, DM Levy, HI Brunner, YL Wu, HN Nagaraja, LE Schanberg, CY  Yu

33

CARRA Project

Clinical

Baseline Characteristics and Medication Use in Children with JIA: Results from the Childhood Arthritis & Rheumatology Research Alliance Registry

S Ringold, AC Dennos, Y Kimura, LE Schanberg, T Beukelman

34

CARRA Project

Clinical

The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Study: Interim Report of Baseline Patient Characteristics and Treatment Choices

S Ringold, G Tomlinson, PF Weiss, LE Schanberg, BM Feldman, ME Riordan, AC Dennos, V Del Gaizo, KL Murphy, Y Kimura

35

CARRA Project

Clinical

Factors Related to Sustained Discontinuation of Medications for Well-Controlled JIA in the Childhood Arthritis & Rheumatology Research Alliance Registry

DB Horton, F Xie, ML Mannion, S Ringold, CK Correll, A Dennos, T Beukelman

36

CARRA Project

Clinical

Characteristics of Patients Enrolled in the FiRst Line Options for Systemic JIA Treatment (FROST) Consensus Treatment Plan Study

T Beukelman, PA Nigrovic, G Tomlinson, V Del Gaizo, M Jelinek, LE Schanberg, A Dennos, ME Riordan, Y Kimura

37

CARRA Project

Clinical

Systemic Juvenile Idiopathic Arthritis Inactive Disease and Withdrawal of Medications: A Survey of the Childhood Arthritis and Rheumatology Research Alliance

K Nanda, S Shenoi, A  Cooper, B Edghill, M Gillispie, B Goldberg, O Halyabar, DB Horton, TG Mason, T Ronis, R Schneider, G Schulert, R Vehe, K Onel

38

CARRA Project

Clinical

The Lupus Cohort in the New CARRA Registry: 10 Months of Enrollment

MB Son, SP Ardoin, AO Hersh, D Levy

39

CARRA Project

Clinical

Towards a better understanding of childhood Sjögren syndrome: evaluation of the 2016 ACR/EULAR classification criteria for use in diagnosing Sjögren syndrome in children

S Stern, J Mehta, S Lieberman

40

CARRA Project

Quality / Education

Consenting for Biological Specimens Collection: The Healthcare Provider and Research Coordinator Perspective

YI Goh, LA Henderson, JMP Woo, M Malloy, ME Riordan

41

CARRA Project

CARRA Project

Supporting CARRA Early Investigators One Step at a Time: Update on the CARRA-Research and Writing Team Pilot Project

K Hayward, J Mehta, E Lawson

42

Abstract

Basic / Translational

Validation of Synovial Fluid Biomarkers for Prediction of Extension in Oligoarticular Juvenile Idiopathic Arthritis

AC Brescia, SM McCahan, HT Bunnell, KE Sullivan, CD Rose

43

Abstract

Basic / Translational

Chondrocyte Conditioned Media Influences TGFb and BMP Signaling Pathways in Both Normal and Juvenile Idiopathic Arthritis Fibroblast-like Synoviocytes

AR Schlefman, MM Simonds, KE Sullivan, CD Rose, AC Brescia

44

Abstract

Basic / Translational

Comparison of pediatric localized scleroderma (LS) to healthy pediatric controls utilizing RNA sequencing for differentially expressed genes (DEGs)

R Mandal, E Mirizio, Q Yan, W Horne, K Schollaert-Fitch, KS Torok

44

Abstract

Basic / Translational

High Dimensional Single-Cell Mass Cytometry Demonstrates Distinct Immune Phenotypic and Functional Signatures in Pediatric SLE and Malaria Patients

R Baxter, JG Perez, D Kong, S Ogolla, B Coleman, C Jackson, X Zhang, D Ghosh, J Cambier, R Rochford, E Hsieh

46

Abstract

Basic / Translational

Cell-Bound Complement Activation Products As Markers of Disease Flares in Childhood-Onset Systemic Lupus Erythematosus

Y Gartshteyn, J Hui-Yuen, M Okado, T Kapoor, T Dervieux, A Askanase

47

Abstract

Basic / Translational

Variations in zinc finger protein gene might impact expression of transient receptor potential channel and receptor tyrosine kinase genes contributing to inflammasome dependent inflammatory response and development of clavicular cortical hyperostosis

L Lamot, K Gotovac, A  Blažeković, D Grčević, M  Lamot, M Vidović, F Borovečki, M Harjaček

48

Abstract

Basic / Translational

Transcription Factor Set Binds Multiple Juvenile Idiopathic Arthritis Genetic Susceptibility Loci

H Moncrieffe, LC Kottyan, X Chen, M Pujato, JB Harley, MT Weirauch, SD Thompson

49

Abstract

Basic / Translational

Anti-transthyretin antibody positivity in pediatric patients with rheumatic disease

JE Orrock, CC Clement, M Vigano, TB Rubinstein, L Santambrogio

50

Abstract

Basic / Translational

Juvenile Idiopathic Arthritis Mediated by Defective GATA-binding Protein 3

AE Patrick, TB Graham, TM Aune, JB Duis

51

Abstract

Clinical

Identification of optimal subcutaneous doses of tocilizumab in children with systemic juvenile idiopathic arthritis

H Brunner, N Ruperto, D Lovell, G Horneff, ML Gámir Gámir, M Hufnagel, J Hsu, M Bao, W Douglass, NL Mallalieu, C Wells, CM Mela, F de Benedetti

52

Abstract

Clinical

Safety of tocilizumab in patients aged < 2 years with active systemic juvenile idiopathic arthritis treated for one year

S Wimalasundera, W Douglass, C Wells, Y Kimura, C Wouters

53

Abstract

Clinical

Systemic Treatment of Uveitis in Children: A Single Center Experience

K Alsaeid, J Alfailakawi, H Alenezi, H Alsaeed

54

Abstract

Clinical

Resilience and Mental Illness in Children with Arthritis in a National Sample of US Youth

T Rubinstein, DR Bullock, K Ardalan, W Mowrey, N Brown, RE Stein

55

Abstract

Clinical

Does Anti-Cyclic Citrullinated Peptide (CCP) Antibody Positivity Predict Erosive Disease in Polyarticular JIA Patients? Experience from a Tertiary Care Medical Center in the US

SV Joshi, B Malla, Y Zhang, T Davis

56

Abstract

Clinical

Is the Patient Global Health Assessment Reliable in Juvenile Idiopathic Arthritis?

CM Wang, R Trachtman, J Szymonifka, KB Onel

57

Abstract

Clinical

Case Series of Psoriasis Associated with Tumor Necrosis Factor Alpha Inhibitors in Children with Chronic Recurrent Multifocal Osteomyelitis

JA Campbell, SS Kodama, D Gupta, Y Zhao

58

Abstract

Clinical

Stepping It Up: The Use of Physical Activity Monitors as an Outcome Measure in Juvenile Myositis

E Brunner, L Tasan, KS Torok, K Francis, E Mirizio, K Schollaert-Fitch, C Oddis, R Aggarwal

59

Abstract

Clinical

Analyze Myositis with Ultrasound and Exercise (AMUSE)- Analysis of Baseline Data

L Tasan, E Brunner, R Aggarwal, C Oddis, E Mirizio, K Schollaert-Fitch, K Francis, J Squires, A Shah, K Torok

60

Abstract

Clinical

Patients with Pediatric Onset Systemic Lupus Erythematosus in South Africa

LB Lewandowski, C Scott

61

Abstract

Clinical

Development of the Treatment and Education Approach for Childhood-Onset Lupus (TEACH) Intervention for Adolescents and Young Adults

N Cunningham, E Moorman, L Fussner, PO  Avar Aydin, A Watts, O Harry, S Kashikar-Zuck, H Brunner

62

Abstract

Clinical

Living with Childhood-onset Systemic Lupus Erythematosus: A Focus Group with Caregivers

O Harry, AC Combs, B Hater, E Roemisch, AW Smith, LM Fussner, R McDade, L Favier, N  Aljaberi, A Watts, JL Huggins, LE Crosby, AC Modi

63

Abstract

Clinical

Safety of belimumab in patients with adult- and pediatric-onset neuropsychiatric systemic lupus erythematosus

M Ma, SK Ganguli, BA  Eberhard, JS Hui-Yuen, A Askanase

64

Abstract

Clinical

Cutaneous Scarring in Neonatal Lupus: A Retrospective Cohort Study

L Briggs, R Levy, E Silverman, E Pope, I Lara-Corrales

65

Abstract

Clinical

Childhood Primary Angiitis of the CNS: deciphering a rare disease through international collaboration

M Twilt, S Sheikh, C Moore, A Dropol, A Sepulveda, S Benseler

66

Abstract

Clinical

Descriptive analysis of pediatric patients with systemic vasculitis admitted to the intensive care unit of a tertiary care hospital: 10-year experience

E Go, CM Rowan, S Tarvin

67

Abstract

Clinical

Reduced-dose Rituximab in treatment of Pediatric Rheumatic diseases

MD Torres Made, NE Rubio Pérez, FG Rodrígue, AV  Villarreal, ME de la O Cavazos

68

Abstract

Clinical

Prevalence of Psychiatric Disorders in a Transition Clinic of Adolescents with Rheumatic Diseases in México

MD Torres Made, NE Rubio-Pérez, AC Arana, F García-Rodríguez, AV Villarreal-Treviño, A López-Rangel, ME Corral-Trujillo, D A. Galarza

69

Abstract

Clinical

Leveraging a Patient-Powered Research Network to Understand the Impact of Adverse Childhood Experiences and Resilience on Children with Rheumatic Diseases

DR Bullock, K Ardalan, T Rubinstein

70

Abstract

Quality / Education

Getting a HEEADSSS in psychosocial screening: use of standardized clinic note templates for psychosocial screening in a pediatric rheumatology clinic

E Brennan Treemarcki, J Szymonifka, A Adams, N Pan, S Taber, K Onel

71

Abstract

Quality / Education

A Collaborative Approach to Diagnosis and Treatment of HLH and MAS:  A Single Center’s Approach to the Development of Evidence-Based Guidelines

O Halyabar, MH Chang, M Schoettler, MA Schwartz, L Benson, CM Biggs, F Dedeoglu, M Gorman, L Lehmann, MS Lo, PA Nigrovic, CD Platt, GP Priebe, J Rowe, RP Sundel, NK Surana, K Weinacht, BA Degar, MM Hazen, LA Henderson

72

Abstract

Quality / Education

The Role of Food in the Self-Management of Pain in Teens with Juvenile Arthritis: Gender and Ethnic Differences

KA Lewis, A Mabry-Flynn, R Carrasco, L Nielson

73

Abstract

Quality / Education

Increasing Adult Rheumatology Fellows’ Confidence and Competence in Providing Transition Care to Transferring Young Adult Rheumatology Patients

RE Sadun, GR Maslow, RJ Chung, LG Criscione-Schreiber

74

Abstract

Quality / Education

The Value of Ethnography in Understanding Burden of Disease and Designing Better Care Delivery Systems in Pediatric Care

DC McDonald, M Bradley, B H Brunner, Shakley, TA Simon